How should South Sudan approach health data sharing with international organisations?
International organisations like WHO, UNICEF, and NGOs collect a lot of health data in South Sudan. What policies should govern how this data is shared and used, and how can South Sudan ensure it retains sovereignty over its health data?
Replies 2
Health data sovereignty is a critical issue for South Sudan. The government should establish clear policies that require all health data collected in South Sudan to be shared with the Ministry of Health, stored on servers within the country or under government control, and used only for purposes agreed with the government. Data sharing agreements with international organisations should specify what data can be shared, for what purposes, and under what conditions.
SSHIA advocates for a national health data governance framework that includes data sovereignty provisions. In the meantime, SSHIA encourages members who work with international organisations to advocate for data sharing practices that respect South Sudan data sovereignty and ensure that the government has access to all health data collected in the country.
Related Discussions
-
How can South Sudan strengthen its health workforce information system?
159 2 -
What are the key health policy priorities for South Sudan in the next five years?
31 2 -
How can health informatics support mental health services in South Sudan?
396 2 -
What is the role of traditional medicine in South Sudan health system and how can it be integrated into health information systems?
44 2 -
How can South Sudan develop a sustainable health informatics workforce?
291 2